Here follows a note in English from the President of the POST POLIO LITTAFF A.C. ASSOCIATION, a Mexican organization IPPSO is cooperating with:
WELCOME TO THE POST POLIO LITTAFF A.C. ASSOCIATION
My greetings to all of you,
The main reason for this note is to let you know about the new Post Polio Litaff A.C. Association.
I was diagnosed with Post Polio Syndrome (PPS) four years ago. As there is no information or medical assistance on this syndrome in Mexico, or Latin American in general. I have truly committed myself to form this association and will be working hard to contribute and help Mexican people suffering PPS.
I am especially interested in reaching low-income people and on making doctors aware of the need of understanding that it is a scientifically proven that this syndrome exists. Thus, it is a priority to spread information about PPS through Private and Public Health means.
It is of relevant importance to have medical professionals who specialise in PPS and Fibromyalgia. At the same time, these syndromes cause multiple complications and alterations in our health. For this reason specialists such as: cardiologists endocrinologists, neurologists, anaesthesiologists are needed to give the specific help needed to each patient.
PPS survivors suffer from progressive muscular atrophy of the muscular skeletal system, a major neuronal loss at a brain level, due to a primary injury when this syndrome appears; which causes chronic fatigue, physical weakness with chronic pain.
Mexico had two major epidemics during the fifties. There are no exact statistics of how many survivors suffer from PPS; as a PPS survivor, I know many people who attend various support groups. Unfortunately, we lack of the required medical attention needed in our country. You can then realise the urgency of the POST POLIO LITTAFF A.C ASSOCIATION, which is the first of its kind in Latin America. In addition to these services, it will have an Internet Website with a database containing medical information on Post Polio, Fibromyalgia and related links, including a directory of physicians and hospitals. It is of major importance that all Health Authorities kindly accept and co-operate with the Post Polio LITAAF A.C Association, as it is needed to achieve the effectiveness of this project.
I would like to stress that there is a great deal of information, and many Institutes and Associations on PPS in English language, unlike we have here in Latin America.
Finally, after culminating the first objective we envision the possibility, in a near future, of building a PPS Clinic to assist every patient that requires it. It might sound somehow utopian, but it isn't. Previously, the idea of the Association seemed an impossible task to perform, but now it is a fact. Consequently, I maintain the hope of achieving the building of a PPS Clinic someday, even if I'm not here to see it. At least the seed will have been planted which I am sure will flourish.
I send this information about the Post Polio LITAAF A.C Association, and will gladly answer any questions you may have.
In addition, I will appreciate your help in sharing this information with relatives and friends, medical colleagues, authorities and other organizations to which this is addressed. We need your help in spreading this information as much as possible, so that we will be able to raise the necessary funding.
I thank you in advance for your kindness and attention,
Esther Lilyana Marasco Garrido, President and Founder
Biol. Faustino Navarro Santos, Vice President
Personal Website Syndrome Post Polio Lilyana Marasco